Alex Pasichnyk is an 12 year old girl from St. Albert who is in the fight of her life. Everyone in Alex’s life is devastated by this sudden turn of events, especially her parents (Lisa and Sheldon) and her sister (Kimber). Alex is in Grade 6 and she loves school but has only been able to attend for one morning so far since September. She is normally a healthy, vibrant child who loves art, animals and swimming.
In late June of this year, Alex was diagnosed with Aplastic Anaemia with a PNH clone. Less than 1 child per million is diagnosed with this, and it’s even rarer to have a PNH clone. She underwent a period of intense IV drug therapy in hopes that her bone marrow would recover, which so far hasn’t happened. The next step is a bone marrow transplant. Alex has been on the bone marrow registry for 11 weeks, with no match found yet. She currently relies on frequent (usually twice weekly) blood transfusions and many medications to survive.
This is where YOU come in! Potential donors for Alex are people between 17 – 35 years of age. There is a greater chance of matching Alex if you are Caucasian, and of Polish, Ukrainian, or English descent. Ethnic background can play a role in matching a donor however we encourage anyone interested to register as the registry is world wide! There are 800 people in Canada alone that are waiting for a match. Potential donors will be added to the registry pool and can not be tested for Alex specifically. You can change your mind about being a donor at anytime, even after you have been matched to someone. The choice will always be yours.
The process to register is easy and free! Please complete a health questionnaire online at www.onematch.ca and a kit will be mailed to your house. You swab your cheek and send back the swab in a postage paid envelope. We are also hosting two donor drives where you can register in person.
Please join us on Nov 25th from 11am – 2pm at Servus Place or Nov 28th at MacEwan University from 9am – 12pm on the main floor in the Robbins Pavillion (109 st Building). If a donor is found there are various ways of harvesting the stem cells, the most common way is very similar to a blood donation. Most people typically return to their regular activities the following day. Staff from Canadian Blood Services are there to support you throughout the entire process.
Please consider registering as soon as possible as time is of the essence for Alex. You could potentially save the life of Alex, or another in need. Thank you!